Down Syndrome Resources available at the Center for Disability Resources Library


To check out any of the materials listed, please contact:
Steven Wilson
Phone: 803-216-3206
Email: steve.wilson@uscmed.sc.edu
Web site: http://uscm.med.sc.edu/CDR/index.asp



The 2002 official parent's sourcebook on Down syndrome.James N. Parker and Philip M. Parker, editors.     ICON Health Publications,2002. Call number: Disabilities-FAM WS 107 O32
-This book provides information on how to research many aspects of Down syndrome using print and web resources.

Adventures in the mainstream: Coming of age with Down syndrome.Greg Palmer. Bethesda, MD: Woodbine House, 2005. Call number: Disabiliites-FAM WS 107 P174a 2005.
- Written by an award-winning PBS documentary writer and producer, this book chronicles a father’s account of his 22-year-old son’s experiences with Down’s Syndrome and transition into the work force.

Babies with Down syndrome: A new parents' guide. Edited by Karen Stray-Gundersen. Woodbine House, 1995.Call number: Disabilities-FAM WS 107 B114 1995

Bebés con sindrome de Down: Guía para padres. Karen Stray-Gundersen. Bethesda, MD: Woodbine House, 1998. Call number: Disabilities-FAM WS 107 B1141 1998
-Spanish edition of Babies with Down Syndrome: A new parents’ guide.

Classroom language skills for children with Down syndrome: A guide for parents and teachers. Libby Kumin.Woodbine House, 2001. Topics in Down syndrome.Call number: Disabilities-PROF LC 4616 K96c 2001

Common threads: Celebrating life with Down Syndrome. 1st ed. Cynthia S. Kidder and Brian Skotko; photography by Kendra Dew. Rochester Hills, Michigan: Band of Angels, 2001. Call Number: FAM WS 107 K46c 2001
- Common threads is an essay and photographic celebration of inspirational accomplishments of people of all ages with Down syndrome (from the publisher).

Count us in: Growing up with Down syndrome. Jason Kingsley and Mitchell Levitz. Harcourt Brace & Co., 1994. Call number: Disabilitites-FAM WS 107 K55c 1994
-Kingsley and Levitz, two young adults with Down Syndrome, describe different aspects of growing up.

Down syndrome: The first 18 months (video). Woodbine House, 2004. Call number: Disabilities-AV WS 107 D7489 2004.
-1 video, 108 minutes. The 'First 18 Months' is a reassuring and realistic introduction to the unique joys and challenges that children with Down syndrome bring to their families. Includes information on newborns, health concerns, therapies, and expectations.

Down syndrome: Visions for the 21st century. Edited by William Cohen, Lynn Nadel, Myra E. Madnick. New York: Wiley-Liss, 2002.Call number: Disabilities-PROF WM 308 D751 2002
-Included in this book are 32 papers from a July 2000 conference of the National Downs Syndrome Society that identify educational, research, and advocacy priorities.

Down syndrome across the life-span. Edited by Monica Cuskelly, Anne Jobling, and Susan Buckley.World Congress on Down Syndrome. Philadelphia: Whurr, 2002. Call number: Disabilities-PROF WM 300 W9273d 2002
-The aim of this book is to bring the latest information on research and good practice to families, practitioners and policy makers in order to improve the services available to individuals with Down syndrome in all countries.

The Down syndrome nutrition handbook: A guide to promoting healthy Lifestyles.Joan E. Guthrie Medlen. 1st ed.Bethesda, Md: Woodbine House, 2002.Call number: Disabilities-FAM WS 107 M491d 2002

The down syndrome transition handbook : Charting your child's course to adulthood. Jo Ann Simons. Bethesda, MD : Woodbine House, 2010. Call number: Disabilities-TRAN WS 107 S611d 2010

Early communication skills for children with Down syndrome: A guide for parents and professionals. Libby Kumin. Woodbine House, 2003. Call number: Disabilities-PROF WS 107 K96e 2003

Early use of total communication (video): Parents' perspectives on using sign language with young children with Down syndrome. Paul H. Brookes Publishing Co., 1991. (22 min.) video + book. Call number: Disabilities-AV WS 107 E12 1991
-For many young children with Down syndrome, the ability to express their thoughts verbally develops more slowly than their ability to understand language. To overcome this obstacle to communication, many parents and professionals are using a total communication approach--combining speech with sign language—to help young children with Down syndrome to express their thoughts and needs, and develop positive bonds with their families. On this video, parents speak about their initial fears as well as the benefits and drawbacks of using total communication with their child.

Fine motor skills in children with Down syndrome: A guide for parents and professionals. Maryanne Bruni. Woodbine House, 1998. Topics in Down syndrome. Call number: Disabilities-PROF WS 107 B896f 1998

Gifts: Mothers reflect on how children with Down Syndrome enrich their lives. Edited by Kathryn Lynard Soper. Bethesda, MD: Woodbine House, 2007. Call number: Disabilities-FAM WS 105.5.F2 G458 2007.
-Sixty-three mothers describe the gifts of respect, strength, delight, perspective, and love, which their child with Down syndrome has brought into their lives.

Gifts of love (video). New York, NY: National Down Syndrome Society. (25 min) Call number: Disabilities-AV WS 107 G458
-Four families of children with Down syndrome talk about their feelings and experiences with their child, particularly during the first six years. All the children live at home and attend programs in their communities

Graduating Peter (video). HBO production.Princeton, NJ: Films for the Humanities & Sciences, 2003. 75 min. Call number: Disabilities-AV LC 4031 G733 2003
- Examines the challenges and benefits of educational mainstreaming for children with mental disabilities. Follows the story of Peter Gwasdauskis, a child with Down syndrome, in sixth grade, eighth grade and high school. Includes interviews with Peter's parents, teachers, fellow students, aids and doctors.

Gross motor skills in children with Down syndrome: A guide for parents and professionals. Patricia Winders.Woodbine House, 1997.Topics in Down syndrome. Call number: Disabilities-PROF WS 107 W763g 1997

Improving the communication of people with Down syndrome. Edited by Jon Miller, Mark Leddy, and Lewis A. Leavitt. Paul H. Brookes Pub., 1999.Call number: Disabilities-PROF WS 107.5 .C6 I34 1999

Medical & surgical care for children with Down syndrome: A guide for parents. Edited by D.C. Van Dyke.Woodbine House, 1995.Topics in Down syndrome.Call number: Disabilitites-FAM WS 107 M489 1995

Opportunities to grow (video). New York, N.Y. : National Down Syndrome Society 1992. (25 minutes) Call number: Disabilities-AV WM 300 O62 1992
-This video describes the ways in which people with Down syndrome can succeed and fulfill their dreams. It also features an interview with actor Chris Burke, who has DS, and his family describing the importance of family support.

A parent's guide to Down syndrome: Toward a brighter future. Siegfried Pueschel. Paul H. Brookes Pub. Co., 2001. Call number: Disabilitites-FAM WS 107 P977p 2001

Show me no mercy: A compelling story of remarkable courage. Robert Perske. Abingdon Press, 1984. Call number: Disabilitites-FAM HQ 759.913 P466s 1984
-Paralyzed in an accident that kills his wife and daughter, Andy Banks, a bus driver, struggles to overcome his handicap and to keep his teenage son with Down Syndrome from being institutionalized.

Teaching the infant with Down syndrome: A guide for parents and professionals.Marci Hanson.Austin, Tex.: PRO-ED, 1987.Call number: Disabilities-PROF WS 107 H251t 1987

Teaching Math to People with Down Syndrome and Other Hands-On Learners. DeAnna Horstmeier, Ph.D. Bethesda, MD: Woodbine House, Inc., 2004. Call number: Disabilities-TRAN LC 4616 H819t 2004
-This book is an excellent guide that parents and educators can use to teach meaningful math to students - with and without learning problems - who struggle with understanding computation, number concepts, and when and how to use these skills.

Teaching reading to children with Down syndrome: A guide for parents and teachers. Patricia Logan Oelwein.Woodbine House, 1995.Topics in Down syndrome. Call number: Disabilities-PROF LC 4620 O28t 1995

Audiovisual Resources


Discovery: Pathways to Better Speech for Children with Down Syndrome. Written, produced and directed by Will Schermerhorn. 2005. Call number: Disabilities-AV LC 4616 D611 2005.
-This DVD takes the viewer into the real world of speech in children with Down Syndrome. Through examples, interviews, and stories, it shows how parents and professionals can bring forth better speech.

What Did You Say?. Written, produced and directed by Libby Kumin, PhD,CCC-SLP. 2006. Call number: Disabilities-AV WS 107 W555 2006.
-This DVD looks at the importance of speech intelligibility (clear speech) for people with Down Syndrome. Featuring Dr. Libby Kumin and dozens of children and young adults, What did you say? explains the various factors underlying speech intelligibility problems common in Down syndrome.

 

Children’s books


How about a hug. Nan Holcomb. Jason and Nordic Publishers, 1987. Call number: Disabilitites-FAM PR990 H725h 1987
-Though it takes much concentration and will for her to accomplish each task, a little girl with Down syndrome is
happy to have many loving helpers along the way.

The man who loved clowns. June Rae Wood.Hyperion Paperbacks for Children, 1995. Call number:
 Disabilitites-FAM WM 300 W876m 1995
-Thirteen-year-old Delrita, whose unhappy life has caused her to hide from the world, loves her uncle Punky, but
sometimes feels ashamed of his behavior because he has Down syndrome.

My friend Isabelle. Eliza Woloson. Bethesda, MD: Woodbine House, 2003. Call number: Disabilities- FAM
PR 990 W866m 2003.
- This book is about the friendship between Isabelle and Charlie. They both like to dance, read, draw, and play at
the park. And like most friends, they are also different from each other. Isabelle has Down Syndrome and Charlie
doesn't. This helps to think about why friendships are special and how our differences can make the world more
interesting.

Our brother has Down's syndrome: An introduction for children. Shelley Cairo, Jasmine Cairo and Tara
Cairo. Firefly Books, 1985. Call number: Disabilitites-FAM PR 990 C136o 1985

Russ and the Firehouse. Janet Elizabeth Rickert. Bethesda, MD: Woodbine House, 2000. Call number:
Disabilities-FAM WS 107 R539r 2000.
-The 2nd book in the children's series, A Day with Russ, is a hit! Join Russ as he goes on duty for the day at a real firehouse. Russ, who has Down syndrome, visits his Uncle Jerry's firehouse. Russ and Uncle Jerry work on various chores at the firehouse. See Russ spray the fire hose, help wash the dog, and do other exciting things.

Special kids make special friends. Debra Buchbinder Shalom.Association for Children with Down's Syndrome, 1995. Call number: Disabilitites-FAM PR 990 S528s 1995
-This book is written to assist children, parents and professionals in developing a better understanding of Down syndrome. Photographs depict children in a pre-school setting emphasizing similarities and strengths of youngsters with Down syndrome rather than their differences. Includes story questions for discussion.

We'll paint the octopus red. Stephanie Stuve-Bodeen. Bethesda, MD: Woodbine House, 1998. Ages 3-6. Call number: Disabilitites-FAM WS 107 S937w 1998
-Emma and her father discuss what they will do when the new baby arrives, but they adjust their expectations when he is born with Down syndrome.

Where's Chimpy? Berniece, Rabe. 1988. Call number: Disabilitites-FAM PR 990 R114w 1988.
-Text and photographs show Misty, a little girl with Down syndrome, and her father reviewing her day's activities in their search for her stuffed monkey.


This page copyright 2006, The University of South Carolina.
Please forward any comments or questions about this web site to Steven Wilson, steve.wilson@uscmed.sc.edu
URL: http://uscm.med.sc.edu/CDR/index.asp