Cerebral Palsy Resources available at the Center for Disability Resources Library
To check out any of the materials listed, please contact:
Web site: http://uscm.med.sc.edu/CDR
Aging and Cerebral Palsy: Pathways to successful aging. A national action plan, a report of the Workgroup on Aging and Cerebral Palsy. Jenny C. Overeynder, Matthew P. Janicki, Margaret A. Turk, editors. Albany, N.Y.: New York State Developmental Disabilities Planning Council, 1994.Call number: Disabilities-PROF WS 342 A267 1994
-This report is about the concerns of aging individuals with cerebral palsy and the recommendations made by the Workgroup on Aging and Cerebral Palsy.
Annie’s Coming Out. Rosemary Crossley and Anne McDonald. Harmondsworth: Penguin, 1984.Call number: Disabilities-FAM WS 342 C951a 1984
-A novel about Annie’s life inside and outside of an institution.
Approach to treatment of the baby. Regi Boehme. Tucson, Ariz.: Therapy Skill Builders, 1990.Call number: Disabilities-PROF WS 342 B671a 1990
-This book is an introduction to neuro-developmental treatment, NDT, for clinicians and therapists.
Caring for children with cerebral palsy: A team approach. Edited by John P. Dormans and Louis Pellegrino. Baltimore: P.H. Brookes Pub. Co.,1998.Call number: Disabilities-PROF WS 342 C277 1998
-This text includes chapters on diagnosis, management, assistive technology, school, and adulthood.
Cerebral palsy: A complete guide for caregiving. Freeman Miller and Steven J. Bachrach. Baltimore: Johns Hopkins University Press, 1998.Call number: Disabilities-FAM WS 342 M647c 1998
-This reference source contains practical advice about the needs of an individual with cerebral palsy and explains medical terms, surgical procedures, and assistive technologies in a format that is easy to understand.
Cerebral palsy: Hope through research. Prepared by Office of Scientific and Health Reports, National Institute of Neurological Disorders and Stroke, MD: The Institute, 1993.Call number: Disabilities-PROF WS 342 T241c 1993
-This pamphlet provides an overview of cerebral palsy and a glossary of associated words.
Cerebral Palsy: What every parent should know. Video. Princeton, NJ: Films for the Humanities, 1990. 19 min.Call number: Disabilities-AV WS 342 C412 1990
-Examines the causes, symptoms, and range of possible treatments of cerebral palsy. Includes the relationship between physical and mental handicaps and the role of medications and physical therapy in treatment.
The Child with cerebral palsy in the regular class. Barbara Aiello.Washington, D.C.: AFT Teachers' Network for Education of the Handicapped, 1989.Call number: Disabilities-PROF LC 4015 A288c 1989
-This pamphlet provides practical information for use in the regular classroom.
Children with cerebral palsy: A parent's guide. Edited by Elaine Geralis. 2nd ed. Bethesda, MD: Woodbine House, 1998.Call number: Disabilities-FAM WS 340 C536 1998
-This guide covers a variety of information for parents, including topics such as early intervention, medical treatments, advocacy, and legal rights.
Don't stop the music. Robert Perske. Nashville: Abingdon Press, 1986.Call number: Disabilities-PROF WS 342 P474d 1986
-Don't stop the music is a novel about two teens with cerebral palsy who help solve a crime.
Early diagnosis and therapy in cerebral palsy: A primer on infant developmental problems. Alfred L. Scherzer and Ingrid Tscharnuter. 2nd ed. New York: M. Dekker, 1990. Pediatric habilitation, v. 6.Call number: Disabilities-PROF WS 342 S326e 1990
-A comprehensive guide regarding diagnosis and management of the very young child with cerebral palsy.
The Epidemiology of the cerebral palsies. Edited by Fiona Stanley, Eva Alberman. London: Spastics International Medical Publications; Philadelphia: Lippincott. Clinics in developmental medicine; no. 87, 1984.Call number: Disabilities-PROF WS 342 E84
-This is a collection of epidemiological studies of the cerebral palsies from many different countries.
Expect the unexpected: My dreams and how I got there. Larry P. Espling. St. Augustine, Fla.: Training Resource Network, 1997.Call number: Disabilities-TRAN WS 342 E77e 1998
-Espling shares the story of his life and experiences with community participation.
Funding of assistive technology (sound recording). RESNA Press, United Cerebral Palsy Association. Washington, D.C.: RESNA, 1990. 6 sound cassettes (630 min). From a workshop held in Washington, D.C., Mar. 1990.Call number: Disabilities-AV WB 320 F981 1990
-Tape 1. Keynote address / Colleen Wieck. Developmental disabilities / Marvin Fifield (90 min.) -- tape 2. Private insurance / Bob Griss, Don Galvin, Karen Vlasach (90 min.) -- tape 3. Medicaid / Allan Bergman, Lewis Golinker (120 min.) -- tape 4. Medicare, Medicaid ; Older Americans, veterans, IRS / Steven White (120 min.) -- tape 5. Funding for kids / J. Plotnick, et al. (120 min.) -- tape 6. Funding for adults / Ronald Loften, June Kailes, Brenda Carson (90 min.).
Getting the job done (video). United Cerebral Palsy Association and Project Hire, United Cerebral Palsy of New Jersey; 1987. 8 min., 10 sec.Call number: Disabilities-AV WB 320 G394 1987
-Shows how technology makes it possible for people with severe disabilities to be employed in a variety of jobs, giving them a new sense of dignity, respect and independence. Describes several specific jobs, the technological adaptations that were necessary, and how both the employer and employee have benefited. Describes how Project Hire in New Jersey provides technological support and training for individual workers.
Going home and other adventures: A guide to supported living for persons with disabilities. United Cerebral Palsy Association of Texas; written by Joyce Dawidczyk, Lisa Arisco, and Patricia Anderson. Austin, Tex.: The Association, 1992.Call number: Disabilities-TRAN WB 29 D269g 1992
-This booklet contains information from the Texas Planning Council for Developmental Disabilities’ Supported Living Project.
Handling the young child with cerebral palsy at home. Nancie R. Finnie. 3rd ed. Boston: Butterworth-Heinemann, 1997.Call number: Disabilities-FAM WS 342 F514h
-This guide contains practical methods and ideas for parents and caregivers to use to enable the child with cerebral palsy to practice motor skills throughout the day.
I'm worried about the future: The aging of adults with cerebral palsy. Jenny Overeynder; report of the Work Group on Aging and Cerebral Palsy to the New York State Developmental Disabilities Planning Council. Albany, N.Y.: New York Developmental Disabilities Planning Council, 1992.Call number: Disabilities-PROF WS 342 N532i 1992
-This report focuses on the medical and physical aspects of aging and cerebral palsy and the problems with accessing primary health care.
Keys to parenting a child with cerebral palsy. Jane Faulkner Leonard, Sherri Cadenhead, Margaret Myers. Hauppauge, NY: Barron's Educational Series, 1997.Call number: Disabilities-FAM WS 342 L581k 1997
-Balancing family relationships, your child’s learning, and your child’s future are some of the topics covered in this parent guide.
King Gimp (DVD). Directed by William A. Whiteford- HBO. Princeton: Films for the Humanities, c1999, 2004. Call number: Disabilities- AV WS 342 K52 2004.
- Dan Keplinger was born with Cerebral Palsy. At age 12, 2 filmmakers began documenting his life for 13 years. An uplifting epic of triumph over adversity, the program is also a portrait of an artist's birth, since it was Dan's discovery of painting and drawing that freed his spirit of expression from the prison of his body.
Melanie, bird with a broken wing : A mother's story Beth Harry. Baltimore : Paul H. Brookes, c2010 .Call number: Disabilities-FAM WS 342 H323m 2010
-Gripping, raw, and beautiful, this book reveals the struggles and rewards of caring for a child with severe disability and helps professionals work more sensitively and effectively with families of children with special needs. Written with grace and candor by special education professional Beth Harry, the book chronicles the life of her daughter, Melanie, who was born with a rare form of cerebral palsy and died less than 6 years later.
My left foot (video): the story of Christy Brown. Screenplay by Shane Connaughton, Jim Sheridan. New York, NY: HBO Video, 1989.103 min. Call number: Disabilities-AV WL 354 M995 1990
-True story of a man who was born with cerebral palsy and achieves greatness as an artist-writer. (Daniel Day-Lewis and Brenda Fricker) Rated: R.
No time for jello: One family's experience with the Doman-Delacato Patterning Program. Berneen Bratt. Cambridge, MA: Brookline Books, 1989.Call number: Disabilities-FAM WS 342 B824n 1989
-A story that tells what a patterning program involves for parents and their family and how a family gauges the benefits of patterning against heavy demands.
Special Friends and Computers: Adapting the computer (video). United Cerebral Palsy Association of Western New York Inc. Van Nuys, CA: Child Health and Development Educational Media, 1989.15 min. Call number: Disabilities-AV QA 76.9 .A3 S741 1989
-Standard computer keyboards present a problem for preschool children with limited motor skills. This video describes several ways to modify the keyboard and demonstrates devices that can be used instead of or in addition to the keyboard: keyguard, mask, Muppet learning keys, power pad, touch window, switches and unicorn board.
Step by Step: Real life experiences with Cerebral Palsy. Colleen Rose. 1995.Call number: Disabilities-FAM WS 342 R795s 1995
-Colleen describes the rehabilitation techniques and common sense approaches she used to teach her daughter how to live independently.
Transferring and lifting children and adolescents: Home instruction sheets. D. LaVonne Jaeger. Tucson, Ariz.: Therapy Skill Builders, 1989.Call number: Disabilities-FAM WS 113 J22t 1989
-These instruction sheets are designed to help physical therapists, parents, teachers, and others who are involved in caring for children with motor disabilities.
UCP: Understanding disabilities, creating opportunities.United Cerebral Palsy Association, 199?.Call number: Disabilities-PROF HV 1568 U17
-This spiral-bound notebook provides an overview of the United Cerebral Palsy Association. The majority of the pages are printouts from an electronic presentation.
UCPA program directory: Technology-related services 1991. Edited by Jim Hollahan, Linette Smith, Sally Z. Weiss. Washington: United Cerebral Palsy Association, Community Services Department, 1991.Call number: Disabilities-PROF WS 342 U58u
-This is the 1991 detailed report on the UCPA survey of affiliate technology-related services.
Uncertain future: Aging and cerebral palsy, clinical concerns. A report of the Workgroup on Aging and Cerebral Palsy. Margaret A. Turk, Jenny C. Overeynder, Matthew P. Janicki, editors. Albany, NY: New York State Developmental Disabilities Planning Council, 1995.Call number: Disabilities-PROF WS 342 U54 1995
-This report describes the clinical concerns of the aging process in relation to individuals with cerebral palsy.
Understanding aging and developmental disabilities: An in-service curriculum. Richard H. Machemer, editor. 2nd ed. Rochester, N.Y.: Training Program in Aging and Developmental Disabilities, Strong Center for Developmental Disabilities, University of Rochester School of Medicine and Dentistry, 1997.Call number: Disabilities-PROF HV 3009.5 .A35 U55 1997
-One of the chapters in this booklet is “Cerebral palsy in adults who are older.”
Yoga for the special child: A therapeutic approach for infants and children with Down syndrome, Cerebral Palsy, and learning disabilities. Sonia Sumar. Buckingham, VA. Special Yoga Publications, 1998.Call number: Disabilities-FAM HV 891 S955y 1998
Children’s booksAll by self: A father's story about a differently-abled child. Ron Taylor. Boulder, CO: Light On Publications, 1991.Call number: Disabilities-FAM PR 990 T245a 1991
-A father’s story about his son with cerebral palsy, which is told in a poetic style.
Danny and the merry-go-round. Nan Holcomb. Exton, Pa.: Jason and Nordic, 1987.Call number: Disabilities-FAM PR 990 H725d 1987
-Danny makes a new friend, Liz, at the park.
Howie helps himself. Joan Fassler. Morton Grove, IL: Albert Whitman & Co., 1975.Call number: Disabilities-FAM PR 990 F249h 1975
-Howie, a child with cerebral palsy, wants to learn to use his wheelchair (Ages 4 to 8).
I'm Joshua and "yes I can". Joan Lenett Whinston. NewYork: Vantage Press, 1989.Call number: Disabilities-FAM PR 990 W572i 1989
-A day in the life of Joshua, a boy with cerebral palsy.
It's your turn at bat: Featuring Mark Riley. Barbara Aiello and Jeffrey Shulman. Frederick, Md.: Twenty-first Century Books, 1988. The Kids on the Block book series. Call number: Disabilities-FAM PR 990 A288i 1988
-A story about Mark, a fifth-grader with cerebral palsy. A question and answer section about cerebral palsy is included.
Taking cerebral palsy to school. Mary Elizabeth Anderson.1st ed. Valley Park, MO: JayJo Books, 2000.Call number: Disabilities-FAM PR 990 A548t 2000
-Chad, a boy with cerebral palsy, describes what his life is like to his classmates and teacher. (Ages 5-10).
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